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`liberation tretment` #19647

am o intrebare pentru bolnavii de scleroza multipla ...ce parere aveti despre teoria doctorului italian zamboni , si despre tratarea acestei boli prin angioplastie .
se considera in aceasta teorie , ca cauza bolii ar fi insuficienta venoasa cerebro spinala . in lume se fac deja astfel de operatii cu efecte , uneori miraculoase.....
cu respect , SILVIU
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Re: `liberation tretment` #19648

Salve Silviu, s-a adus in discutie acesta informatie aici ;)

Iozefina si Dionis au pus aceste video:

https://www.video.mediaset.it/video/iene/puntata/184923/golia-la-tecnica-del-prof-zamboni-e-la-ccsvi.html

https://www.ctv.ca/CTVNews/OttawaHome/20091120/MS_W5_091120/

Petru a dat ceva detalii... cei in tema pot subscrie :)
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Re: `liberation tretment` #19655

Pe forumul Societatii de Scleroza Multipla din Romania, s-a dezbatut in detaliu acest subiect.

Doua threaduri:

CCSVI (Insuficienta venoasa si SM)

The Liberation Treatment


Am vazut ca ai pornit si o petitie.

Eu am auzit de Zamboni zilele trecute cand am tradus un video de la X-cell.
Cei de la X-Cell, Germania, au inceput sa faca procedura lui Zamboni de vreo 6 luni.
Jurnalistul de la Telegraph, care e cu scleroza multipla, a filmat "consultatia" cu camera ascunsa. Doctorul ii explica despre o dubla operatie: a)procedura lui Zamboni + b)implant de celule stem din maduva osoasa.

Vorbesc de reusite de 80% etc. ...dar ei prin 80%, inteleg ...ca poate a zis pacientul ca s-a simtit mai bine ..doar ei stiu ce inteleg.



Fara teste clinice, o urmarire a evolutiei pacientilor pe un termen mai lung, dovezi clare ale imbunatatiri, e de preferat sa se aiba mare grija.
Nu stiu mai multe de Zamboni, pot spune doar, ca jurnalistul de la Telegraph in articolele pe care le-a scris, a fost foarte, foarte sceptic.

Sper sa-ti fie de folos info.
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Re: `liberation tretment` #19664

imi pare foarte rau , dar sunteti gresit informat ...`liberation treatment` cu terapia celulelor stem - nu au nimic in comun . stiu ca se doreste de mari concerne farmaceutice , si exista puternice forte internationale , care incearca sa complice dezvaluirea adevarului . exista foarte mari interese financiare , dar ... :unsure:
norocul meu este ca stiu bine limba engleza , si am citit teoria doctorului zamboni , de pe siteuri straine .
www.multiplesclerosissurgery.com
`NU ZDROBITI MUGURII SPERANTEI !!!
cu respect , SILVIU
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Re: `liberation tretment` #19665

Ai inteles gresit.

Nu am spus ca procedura lui Zamboni ar avea ceva de a face cu celule stem. Am spus doar ca cei de la X-Cell, fac procedura lui Zamboni - treaba cu venele din gat.

Pe langa procedura lui Zamboni, ei de asemenea recomanda implant cu celule stem, si spun ca pacientii care au avut AMBELE proceduri au avut imbunatatiri. Se vorbeste de un procent de 80%.

Pacientii, pot alege doar procedura lui Zamboni, sau AMBELE. Ei recomanda ambele proceduri. Desigur ca sunt diferente de cost.

Articolul din Telegraph e aici. Pasajul in care vorbeste de Zamboni e asta:

***

""We have some amazing results with this treatment," he told me.

He insisted that the best results came from combining this approach with an operation developed by an Italian doctor named Zamboni, which involved, Prof Haberland said, widening veins in the patient's neck.

Zamboni had, Prof Haberland claimed, established that many neurological conditions were connected to a narrowing of these veins.

When the operation to widen them was used in conjunction with the injection of stem cells, "you have a win-win situation … 80 per cent of our patients report improvements".

He pointed to a Dutch patient who had been in a wheelchair prior to the operation, but after it, had been able to walk.

So if I had the treatment, would I be able to walk? "You would have a chance", Prof Haberland replied. "The response is very different from patient to patient. But you would have a chance." And it would only cost about 19,500 euros.

Against my better judgement, I felt my hopes rising. But there were also some questions. How did Prof Haberland know how successful the treatment was? What was the follow up? "We ask patients to fill in a questionnaire three months after the operation, and we see them here and test them after six months", he said.

There is, however, considerable doubt whether a patient questionnaire has any value, since it is not an objective measure.

There is still more doubt as to how many patients actually bother to travel all the way to Düsseldorf for an assessment by the centre six months after the operation.

Moreover, Prof Haberland said he had only been doing the double operation – the combination of stem cells and widening the veins in the patient's neck – for six months.

How, I wondered, could there be any reliable data from such a short period? Would Prof Haberland be publishing his results? No, he said: he had no plans to. "We need more cases and then we need to make a double blind study in multi centres. This is a long way off."

But if Prof Haberland hasn't enough patients for a proper trial – how can he be sure even that his operation isn't harmful, let alone that it actually benefits patients?"
***

Dupa cum spuneam, jurnalistul de la Telegraph, care are SM, e foarte sceptic.

Nu incerc sa zdrobesc mugurii sperantei. Fie sa fie cum spui tu. Cred ca cei de pe forumurile SM, stiu mult mai multe.
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Re: `liberation tretment` #19667

poate ca am inteles gresit , imi cer scuze ... daca o operatie ccsvi la venele cerebro spinale costa aproape 7.000 euro , daca se mai adauga si tratament ` cell stem ` , atunci pretul final al procedurii va fi mult mai mare - logic . eu din ce am vazut pe `you tube` , pacientii care au urmat aceasta interventie se simt cu totii mai bine , si nu aminteau nimic de alt implant cu celule stem ;) . sunt foarte informat , deoarece ma informez aproape zilnic de pe siteuri straine in limba engleza B) spre exemplu : www.reformedMS.com / org , www.ccsvi-online.com , e.t.c.
cu respect , SILVIU
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Re: `liberation tretment` #19668

spre a ma dumeri mai bine am vorbit prin messenger cu o asistenta medicala de- doctorului ivo petrov de la `tokuda hospital` ,sofia, unde se executa cu succes procedura ccsvi pentru bolnavii de SM . mi-a raspuns ca nu se recomanda alt tip de procedura medicala [transplant stem cell] , dupa procedura lor ccsvi ... ;)
silviu
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Re: `liberation tretment` #19675

IMI PARE FOARTE RAU CA O SPUN `DIONNIS` , DAR FILMULETUL POSTAT DE TINE PARE O `FACATURA IEFTINA` PE CARE NU O POATE LUA NIMENI IN SEAMA ...NU ESTE DECAT O MINCIUNA !!! ... DE CE `CADRUL MEDICAL RESPECTIV , NU ISI ARATA FATA ? LUCREAZA OARE LA D.I.I.C.O.T. ??? :laugh:
SILVIU
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